Posts Tagged ‘Hairy Cell Leukemia

13
Sep
10

Miss Stephanie still aint buyin what hairys celln…

IowaHarleyGirl As you may remember from my previous posts about “The Many Thoughts of Harley Girl” Stephanie Maier, is planning a little “Hairy Cell” butt-kicking on October 9th in West Des Moines, Iowa, by participating in a fund-raiser sponsored by the The Leukemia & Lymphoma Society.

Here is the webpage to get all the information about how you can show this amazing woman a little support in her quest to beat this monster blood cancer. No donation is too small, ever! When coupled with others, it turns into a means to ” fund lifesaving research that has contributed to major advances in the treatment of blood cancers and treatments for other types of cancer, such as chemotherapy and stem cell transplants. New targeted therapies that kill cancer cells without harming normal tissue are providing drugs and procedures that are improving quality of life”.  


I don’t want anyone to ever go through any event that is life altering by feeling alone. It is our social networking sites that allow us to go through these times with the arms of people from all across the country, around us and offering comfort.   

I admire this woman for her courage in simply sharing her story and so, we can say “thank you” and offer our support by showing her that we are behind her, even though we wont actually experience the event. From any place in the world, we can be a part of Stephanie’s fight against this “Hairy” beast. Let’s show her what the spirit of community means by helping her in her battle.  
 
 

 

  

Also, take a moment to wish her well on Twitter at Iowa Harley Girl. GO, STEPH!! 
Lady Godiva on wheels, being Stephanie’s little cheerleader!!  
 
 
 

 

25
Jun
10

She Ain’t Buyin What Hairy’s Cell’n…part trois; What Stephanie is doing…

IowaHarleyGirlTo refresh your memories; I told you that Stephanie was diagnosed with the cancer, Hairy Cell Leukemia and you have been introduced information about the disease. This disease is chronic but, with proper diet, excercise, and treatment, life can be lived with all the gusto that this little Iowa Harley Girl can muster up! So, what does this dynamo of a woman do when the going gets tough and Hairy is hounding you?  She runs, and runs, and runs….. Let me explain.
 
After chemotherapy, Stephanie was released to go home. She had lost 40lbs and had to regain her strength. She also vowed to get healthy! She and her husband, Dan, bought a treadmill and she started walking everyday. Dan introduced her to Pod-runner Pod-casts and one caught her eye. It was called 1st day to 5k.  Let me use some of Stephanie’s own words to describe the rest.

I decided to train for a 5k run. It was slow going at first. I’ve never been a runner. I was always the slowest kid in school when it came to the Presidential fitness 1 mile run test. The first week I was able to run a mile in 18 minutes. When I got to week 5 I was at 13 minute miles. I made it to week 10 and am now able to run a 5k on the treadmill in 40 minutes. What a huge accomplishment for me. I’m feeling the best I’ve ever felt. I’m on my way to being a healthy, sexy, strong woman. The woman that has always been inside me but took 41 years to find. No one is stopping me now. Currently I’m working on the Pod-runner Pod-cast Gateway to 8k.
Remember that you can read Stephanie’s whole story at  http://iowaharleygirl.blogspot.com/2010/04/live-your-life-now-by-ihg-on-garage.html

Now that Stephanie has a treadmill and finds out she is actually a runner in disguise, she decides to do something astonishing! She decides to join a 5K race for the Light The Night Walk. Light The Night Walk is The Leukemia & Lymphoma Society’s evening walk/run and fundraising event. It is the nation’s night to pay tribute and bring hope to thousands of people battling blood cancers and to commemorate loved ones lost.  Check out Stephanie’s “team page” and join the cause to find a cure with a donation. It doesn’t matter how small the donation is! Every bit counts to helps. Get all the information you need to be a part of Stephanie’s team at http://pages.lightthenight.org/ia/DesMineL10/AintBuyinWhatHairysCelln You just can’t keep a great woman down!

Lady Godiva on wheels…… feeling the need to give!

Next up; She Ain’t Buyin What Hairy’s Cell’n…part quatre; Stephanie gets her OWN bike….

24
Jun
10

She Ain’t Buyin What Hairy’s Cell’n…part duex; what Stephanie is fighting…

IowaHarleyGirlTo refresh your memories; The many thoughts of Harleygirl, Stephanie, has shared with her readers about her recent diagnosis of Hairy Cell Leukemia. Now, you may never have heard of this cancer, I hadn’t!  Let me help you understand this disease.

Here is some excellent information from the Hairy Cell Leukemia Research Foundation:Photo of hairy cell leukemia cells under a microscope
“Hairy cell leukemia (HCL) is a rare blood disorder that was first reported at Ohio State University in 1958. HCL is a chronic leukemia and does not develop into acute leukemia. The name”hairy cell” describes the abnormally shaped white blood cells with hair-like projections that characterize this disorder. Most patients diagnosed with HCL are male with a median age of 52. However, with more widespread knowledge of the disease and better diagnostic techniques, physicians have identified HCL in both sexes and among younger adults.”

 

Here is the website for more information and education,  http://hairycellleukemia.org/about.php  or http://www.mayoclinic.com/health/hairy-cell-leukemia/DS00673 
In addition, read the story of Stephanie’s diagnosis at http://iowaharleygirl.blogspot.com/2010/04/live-your-life-now-by-ihg-on-garage.html , If you really want to understand the feelings of a person in crisis, read this story. Stephanie was very honest about it all. It takes great courage to charge in with guns blazing like this girl has.

Although this disease is chronic and the cause is unknown, it is treatable and the long-term prognosis for most patients is excellent. Stephanie is hitting the disease head-on and being very proactive with her diet and her excercise. She has been working on becoming stronger and has vowed to become “healthy”. And, she is doing exactly that. She is on the road to triumph! 

Lady Godiva on wheels… sharing a victory!

Next up; She Ain’t Buyin What Hairy’s Cell’n…part trois; What Stephanie is doing…

23
Jun
10

She Ain’t Buyin What Hairy’s Cell’n…part un; Who is Stephanie??

IowaHarleyGirlOne of my favorite bloggers is Stephanie at “The Many Thoughts of Harleygirl” http://www.iowaharleygirl.blogspot.com/ and IowaHarleyGirl on Twitter. I started reading her a couple years ago and have enjoyed all her blogs since. I even went back to the beginning and read her early works. Here is what her very first blog entry said from Thursday, October 13, 2005:

IowaHarleyGirl’s first posting…OH MY!

Welcome to my blog! Don’t worry, I’m not going to just blog about Harley Davidson motorcycles. I’m going to blog about everything that interests me or makes me go “HUM”. I’ve wanted to do this for so long and I finally am. How exciting! So welcome…visit as often as you like and leave comments if you so feel the need. 

She has stayed true to her word! It has been quite a journey reading all her ideas and watching her become more and more skilled as she has proved to be a true journalist. She has loads of ideas about music, honors our soldiers, has information about all the events, gives accounts of road trips or around town trips, and tops it off with a little bit of this and a little bit of that.
The reason I have chosen to introduce my blogging friend on my blog is this; in reading someones thoughts through blogs, they are unable to exclude the many things that are part of their own personal lives. As is the case, Stephanie chose to share with all her faithful readers that last year, she became ill and was diagnosed with a not funny cancer with a very funny name… Hairy Cell Leukemia.
I couldn’t help but share this story of courage so people can see a real example of what happens to a person in crisis and how they triumph. There is more to come and I know you will enjoy her story.

Lady Godiva on wheels….. loving to share.

Next up; She Ain’t Buyin What Hairy’s Cell’n…part duex; what Stephanie is fighting…




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